Chronic Illness Life with Ehlers-Danlos Syndrome: Postural Orthostatic Tachycardia Syndrome (POTS)

Read about my chronic illness journey with Vascular EDS, POTS, and reaching specialized care for autonomic nervous dysfunction.… Read More Chronic Illness Life with Ehlers-Danlos Syndrome: Postural Orthostatic Tachycardia Syndrome (POTS)

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immunizeLABS: Products to Soften the Brunt of Chronic Illness Life with Ehlers-Danlos Syndrome

Disclosure: I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. Please see the Disclosures Page for more information. If you’ve not caught on, I… Read More immunizeLABS: Products to Soften the Brunt of Chronic Illness Life with Ehlers-Danlos Syndrome

Chronic Life with EDS Update: Accessible Housing, A Gillion Medical Tests and More

It’s a little quiet here at Only in this Head: Chronic Illness Life with Ehlers-Danlos Syndrome but for good reasons. Over the past few months with the holidays (and recovery from my seasonal depression), the house-search, and all my medical appointments my spoons are lacking a great deal. So goes chronic life. I am dealing. Still, it… Read More Chronic Life with EDS Update: Accessible Housing, A Gillion Medical Tests and More

Chronic Illness Life with Ehlers-Danlos Syndrome: Neuropsychology Take One

The neuropsychologist looked at me with all the typical body language indicating sympathy and said (paraphrased): “Everyone one has a plate in life. Your plate is overflowing. As your plate’s contents grew, some things fell off. We will look at those things.” It took me roughly 24 hours to process what exactly this meant. I… Read More Chronic Illness Life with Ehlers-Danlos Syndrome: Neuropsychology Take One