Chronic Pain Toolkit: 6 Tools to Improve the Quality of That Chronically Painful Life

I am one of the  cursed ones, doomed to live life with chronic, progressive musculoskeletal pain. Whether it’s my muscles, joints, bones, ligaments or tendons acting up, my diagnosis of Ehlers-Danlos Syndrome plays out painful effects throughout any one or all of these system components. Finding a pain management strategy to improve my quality of life is an Art of… Read More Chronic Pain Toolkit: 6 Tools to Improve the Quality of That Chronically Painful Life

My Ehlers-Danlos Syndrome Medical History

Ehlers-Danlos Syndrome is an inheritable, genetic disease affecting the quality of collagen in the body. Collagen is one of the most abundant proteins within the body,  making up the tissue structures of ALL body systems. The faulty collagen produced  in the body of the Medical Zebra ranges in effects from benign hypermobility to severe musculoskeletal debilitation.… Read More My Ehlers-Danlos Syndrome Medical History

Ehlers Danlos Syndrome (EDS): Simply Explained

Google Ehlers-Danlos Syndrome and you will soon find yourself submerged in a world of chronic pain, joint issues, progressive disability and dense medical explanations for the multi variants of this genetic syndrome. Or maybe, you’ll just see some cool party tricks and hear nothing of how debilitating the condition can be. When EDS first crossed my… Read More Ehlers Danlos Syndrome (EDS): Simply Explained

TMedPharma’s 3-Product Protocol Versus the Chronic Pain-Fatigue-Sleep Cycle Disturbance in EDS

My Chronic Illness Life with EDS  undulates with many chronic issues like pain, sleep disturbances, and chronic fatigue. This trio is enough to make life difficult but when you add in chronic gastrointestinal issues, delayed and immediate food hypersensitivities and a dash of neurosensory processing deficits with a sprinkle of cognitive impairment every day is… Read More TMedPharma’s 3-Product Protocol Versus the Chronic Pain-Fatigue-Sleep Cycle Disturbance in EDS

Thankful Thursdays Volume VII- Online Chronic Illness and Disability Communities (Living List of Chronic Illness and Disability Resources)

Welcome back to Thankful Thursdays, my gratitude series running until the USA’s Thanksgiving 2016! This series is an effort to post more routinely and explore the gratitude available while living with Vascular Ehlers-Danlos Syndrome, POTS and several associated conditions. Last week, I wrote about the blessing my wheelchair is and how society all too often views wheelchair… Read More Thankful Thursdays Volume VII- Online Chronic Illness and Disability Communities (Living List of Chronic Illness and Disability Resources)