immunizeLABS: Products to Soften the Brunt of Chronic Illness Life with Ehlers-Danlos Syndrome

Disclosure: I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. Please see the Disclosures Page for more information. If you’ve not caught on, I… Read More immunizeLABS: Products to Soften the Brunt of Chronic Illness Life with Ehlers-Danlos Syndrome

Chronic Illness Life with Ehlers-Danlos Syndrome: Neuropsychology Take One

The neuropsychologist looked at me with all the typical body language indicating sympathy and said (paraphrased): “Everyone one has a plate in life. Your plate is overflowing. As your plate’s contents grew, some things fell off. We will look at those things.” It took me roughly 24 hours to process what exactly this meant. I… Read More Chronic Illness Life with Ehlers-Danlos Syndrome: Neuropsychology Take One

My Chronic Illness Life with Ehlers-Danlos Syndrome: A Personal Health and Life Update

The year twenty-sixteen is coming to a close and I cannot believe how much has changed since this time last year! Chronic Illness Life with Ehlers-Danlos Syndrome peaks and troughs constantly, often without warning.  Since getting my official diagnosis, research on how to best manage my FINALLY named disease helps and I’m adjusting as more things… Read More My Chronic Illness Life with Ehlers-Danlos Syndrome: A Personal Health and Life Update

Chronic Pain Toolkit: 6 Tools to Improve the Quality of That Chronically Painful Life

I am one of the  cursed ones, doomed to live life with chronic, progressive musculoskeletal pain. Whether it’s my muscles, joints, bones, ligaments or tendons acting up, my diagnosis of Ehlers-Danlos Syndrome plays out painful effects throughout any one or all of these system components. Finding a pain management strategy to improve my quality of life is an Art of… Read More Chronic Pain Toolkit: 6 Tools to Improve the Quality of That Chronically Painful Life

My Ehlers-Danlos Syndrome Medical History

Ehlers-Danlos Syndrome is an inheritable, genetic disease affecting the quality of collagen in the body. Collagen is one of the most abundant proteins within the body,  making up the tissue structures of ALL body systems. The faulty collagen produced  in the body of the Medical Zebra ranges in effects from benign hypermobility to severe musculoskeletal debilitation.… Read More My Ehlers-Danlos Syndrome Medical History