Chronic Illness Life with Ehlers-Danlos Syndrome: Postural Orthostatic Tachycardia Syndrome (POTS)

Read about my chronic illness journey with Vascular EDS, POTS, and reaching specialized care for autonomic nervous dysfunction.… Read More Chronic Illness Life with Ehlers-Danlos Syndrome: Postural Orthostatic Tachycardia Syndrome (POTS)

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immunizeLABS: Products to Soften the Brunt of Chronic Illness Life with Ehlers-Danlos Syndrome

Disclosure: I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. Please see the Disclosures Page for more information. If you’ve not caught on, I… Read More immunizeLABS: Products to Soften the Brunt of Chronic Illness Life with Ehlers-Danlos Syndrome

Chronic Life with EDS Update: Accessible Housing, A Gillion Medical Tests and More

It’s a little quiet here at Only in this Head: Chronic Illness Life with Ehlers-Danlos Syndrome but for good reasons. Over the past few months with the holidays (and recovery from my seasonal depression), the house-search, and all my medical appointments my spoons are lacking a great deal. So goes chronic life. I am dealing. Still, it… Read More Chronic Life with EDS Update: Accessible Housing, A Gillion Medical Tests and More

Chronic Pain Toolkit: 6 Tools to Improve the Quality of That Chronically Painful Life

I am one of the  cursed ones, doomed to live life with chronic, progressive musculoskeletal pain. Whether it’s my muscles, joints, bones, ligaments or tendons acting up, my diagnosis of Ehlers-Danlos Syndrome plays out painful effects throughout any one or all of these system components. Finding a pain management strategy to improve my quality of life is an Art of… Read More Chronic Pain Toolkit: 6 Tools to Improve the Quality of That Chronically Painful Life

My Ehlers-Danlos Syndrome Medical History

Ehlers-Danlos Syndrome is an inheritable, genetic disease affecting the quality of collagen in the body. Collagen is one of the most abundant proteins within the body,  making up the tissue structures of ALL body systems. The faulty collagen produced  in the body of the Medical Zebra ranges in effects from benign hypermobility to severe musculoskeletal debilitation.… Read More My Ehlers-Danlos Syndrome Medical History