immunizeLABS: Products to Soften the Brunt of Chronic Illness Life with Ehlers-Danlos Syndrome

Disclosure: I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. Please see the Disclosures Page for more information. If you’ve not caught on, I… Read More immunizeLABS: Products to Soften the Brunt of Chronic Illness Life with Ehlers-Danlos Syndrome

Chronic Illness Life with Ehlers-Danlos Syndrome: Health Care Induced PTSD

Health Care Induced PTSD creates barriers to care, lined with sharp knives to cut those who need help the most but do not have the strength to withstand the pain, panic and isolation caused by practitioners who haphazardly wield a biased battleaxe of non-specific diagnoses instead of completing due diligence to help suffering patients. … Read More Chronic Illness Life with Ehlers-Danlos Syndrome: Health Care Induced PTSD

The Twelve Days of Chronic Illness Christmas

The holidays a rough on many of us living with chronic disease and/or disabilities for a number of reasons, each unique and valid.
It’s hard not to let the weight of the season set us back a peg or five. Positive coping tactics are crucial to reducing stress and the risk meter for holiday flares.
The Twelve Days of Chronic Illness Christmas is my way of coping with my chronic diseases and disabilities during a time of the year when I am already prone to increased depression.What is our struggle worth if we cannot laugh together about it every now and again?
Please enjoy my rendition of this holiday favorite and may you have a restorative holiday season filled with tons of extra spoons along the whole holly jolly way!… Read More The Twelve Days of Chronic Illness Christmas

Chronic Pain Toolkit: 6 Tools to Improve the Quality of That Chronically Painful Life

I am one of the  cursed ones, doomed to live life with chronic, progressive musculoskeletal pain. Whether it’s my muscles, joints, bones, ligaments or tendons acting up, my diagnosis of Ehlers-Danlos Syndrome plays out painful effects throughout any one or all of these system components. Finding a pain management strategy to improve my quality of life is an Art of… Read More Chronic Pain Toolkit: 6 Tools to Improve the Quality of That Chronically Painful Life

My Ehlers-Danlos Syndrome Medical History

Ehlers-Danlos Syndrome is an inheritable, genetic disease affecting the quality of collagen in the body. Collagen is one of the most abundant proteins within the body,  making up the tissue structures of ALL body systems. The faulty collagen produced  in the body of the Medical Zebra ranges in effects from benign hypermobility to severe musculoskeletal debilitation.… Read More My Ehlers-Danlos Syndrome Medical History