Disclosure: I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. Please see the Disclosures Page for more information. If you’ve not caught on, I… Read More immunizeLABS: Products to Soften the Brunt of Chronic Illness Life with Ehlers-Danlos Syndrome
Oh, my amygdala! We’ve danced this exhausting dance too many times before. There is no use beating around the bush, we both know these overreactions don’t help. Yes, there are things I want you to attend to but please do not set off alarm systems for every petty variation in my experience! It’s exhausting and… Read More Retraining my Brain with The Gupta Programme
Health Care Induced PTSD creates barriers to care, lined with sharp knives to cut those who need help the most but do not have the strength to withstand the pain, panic and isolation caused by practitioners who haphazardly wield a biased battleaxe of non-specific diagnoses instead of completing due diligence to help suffering patients. … Read More Chronic Illness Life with Ehlers-Danlos Syndrome: Health Care Induced PTSD
The holidays a rough on many of us living with chronic disease and/or disabilities for a number of reasons, each unique and valid.
It’s hard not to let the weight of the season set us back a peg or five. Positive coping tactics are crucial to reducing stress and the risk meter for holiday flares.
The Twelve Days of Chronic Illness Christmas is my way of coping with my chronic diseases and disabilities during a time of the year when I am already prone to increased depression.What is our struggle worth if we cannot laugh together about it every now and again?
Please enjoy my rendition of this holiday favorite and may you have a restorative holiday season filled with tons of extra spoons along the whole holly jolly way!… Read More The Twelve Days of Chronic Illness Christmas
I am one of the cursed ones, doomed to live life with chronic, progressive musculoskeletal pain. Whether it’s my muscles, joints, bones, ligaments or tendons acting up, my diagnosis of Ehlers-Danlos Syndrome plays out painful effects throughout any one or all of these system components. Finding a pain management strategy to improve my quality of life is an Art of… Read More Chronic Pain Toolkit: 6 Tools to Improve the Quality of That Chronically Painful Life
Ehlers-Danlos Syndrome is an inheritable, genetic disease affecting the quality of collagen in the body. Collagen is one of the most abundant proteins within the body, making up the tissue structures of ALL body systems. The faulty collagen produced in the body of the Medical Zebra ranges in effects from benign hypermobility to severe musculoskeletal debilitation.… Read More My Ehlers-Danlos Syndrome Medical History
My diagnosis of Ehlers-Danlos Syndrome (EDS) took a very long or short time depending on the perspective. While all my signs and symptoms tell the tale, my ability to persevere in spite of great challenges along with the ignorance of my local medical community resulted in a 16-year battle, at times desperately seeking a reason behind all the… Read More Ehlers-Danlos Syndrome: My Journey to Genetics