Chronic Illness Life with Ehlers-Danlos Syndrome: Postural Orthostatic Tachycardia Syndrome (POTS)

Read about my chronic illness journey with Vascular EDS, POTS, and reaching specialized care for autonomic nervous dysfunction.… Read More Chronic Illness Life with Ehlers-Danlos Syndrome: Postural Orthostatic Tachycardia Syndrome (POTS)

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Chronic Illness Life with Ehlers-Danlos Syndrome: Health Care Induced PTSD

Health Care Induced PTSD creates barriers to care, lined with sharp knives to cut those who need help the most but do not have the strength to withstand the pain, panic and isolation caused by practitioners who haphazardly wield a biased battleaxe of non-specific diagnoses instead of completing due diligence to help suffering patients. … Read More Chronic Illness Life with Ehlers-Danlos Syndrome: Health Care Induced PTSD

Chronic Illness Life with Ehlers-Danlos Syndrome: Neuropsychology Take One

The neuropsychologist looked at me with all the typical body language indicating sympathy and said (paraphrased): “Everyone one has a plate in life. Your plate is overflowing. As your plate’s contents grew, some things fell off. We will look at those things.” It took me roughly 24 hours to process what exactly this meant. I… Read More Chronic Illness Life with Ehlers-Danlos Syndrome: Neuropsychology Take One

My Ehlers-Danlos Syndrome Medical History

Ehlers-Danlos Syndrome is an inheritable, genetic disease affecting the quality of collagen in the body. Collagen is one of the most abundant proteins within the body,  making up the tissue structures of ALL body systems. The faulty collagen produced  in the body of the Medical Zebra ranges in effects from benign hypermobility to severe musculoskeletal debilitation.… Read More My Ehlers-Danlos Syndrome Medical History

Ehlers Danlos Syndrome (EDS): Simply Explained

Google Ehlers-Danlos Syndrome and you will soon find yourself submerged in a world of chronic pain, joint issues, progressive disability and dense medical explanations for the multi variants of this genetic syndrome. Or maybe, you’ll just see some cool party tricks and hear nothing of how debilitating the condition can be. When EDS first crossed my… Read More Ehlers Danlos Syndrome (EDS): Simply Explained