“This year is one of the weirdest years of my life yet,” I said this casually to my hubs while en route to yet another out of town appointment. There are so many these days now I am all diagnosed, official with Ehlers-Danlos Syndrome. I get lost in the fold, but I am grateful to at… Read More Open Letter to my Practitioners, From One Chronically Ill Patient Newly Diagnosed with Ehlers-Danlos Syndrome
My chronic illness journey is lengthy story. I began seeking help for all my whackamole symptoms from the Healthcare System in 1999. My progressive deterioration took 17 years before the culprit received an official name. I was diagnosed with Ehlers-Danlos Syndrome by my primary care physician in January 2016. This finding was corroborated in May 2016 by… Read More Chronic Illness #TBT: Undiagnosed EDS Health Crisis Story
As a chronically ill person who is bed/chair bound for 95% of the day I have lost all semblance of a social life. Between the obvious effects of illness such as pain and disability, there is also not a lot of energy/time what with doctors appointments, therapies and self care taking a large portion of… Read More Spoonie Film Club
We all have stories behind the titles we bestow upon our blogs. Here is my story. … Read More Only in this Head- My Dark, Lovely Passenger Over These Years with Chronic Illness.
Tumblr is wonderful for activism, specially for the disabled. This wheelchair PSA reminds others wheelchairs may not always be used for reasons you might think. … Read More Wheelchairs PSA From Tumblr- So Good