Open Letter to my Practitioners, From One Chronically Ill Patient Newly Diagnosed with Ehlers-Danlos Syndrome

“This year is one of the weirdest years of my life yet,”  I  said this casually to my hubs while en route to yet another out of town appointment. There are so many these days now I am all diagnosed, official with Ehlers-Danlos Syndrome. I get lost in the fold, but I am grateful to at… Read More Open Letter to my Practitioners, From One Chronically Ill Patient Newly Diagnosed with Ehlers-Danlos Syndrome

Chronic Illness #TBT: Undiagnosed EDS Health Crisis Story

My chronic illness journey is lengthy story. I began seeking help for all my whackamole symptoms from the Healthcare System in 1999. My progressive deterioration took 17 years before the culprit received an official name. I was diagnosed with Ehlers-Danlos Syndrome by my primary care physician in January 2016. This finding was corroborated in May 2016 by… Read More Chronic Illness #TBT: Undiagnosed EDS Health Crisis Story