Chronic Illness Life with Ehlers-Danlos Syndrome: Postural Orthostatic Tachycardia Syndrome (POTS)

Read about my chronic illness journey with Vascular EDS, POTS, and reaching specialized care for autonomic nervous dysfunction.… Read More Chronic Illness Life with Ehlers-Danlos Syndrome: Postural Orthostatic Tachycardia Syndrome (POTS)

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Chronic Illness Life with Ehlers-Danlos Syndrome: Health Care Induced PTSD

Health Care Induced PTSD creates barriers to care, lined with sharp knives to cut those who need help the most but do not have the strength to withstand the pain, panic and isolation caused by practitioners who haphazardly wield a biased battleaxe of non-specific diagnoses instead of completing due diligence to help suffering patients. … Read More Chronic Illness Life with Ehlers-Danlos Syndrome: Health Care Induced PTSD

Chronic Life with EDS Update: Accessible Housing, A Gillion Medical Tests and More

It’s a little quiet here at Only in this Head: Chronic Illness Life with Ehlers-Danlos Syndrome but for good reasons. Over the past few months with the holidays (and recovery from my seasonal depression), the house-search, and all my medical appointments my spoons are lacking a great deal. So goes chronic life. I am dealing. Still, it… Read More Chronic Life with EDS Update: Accessible Housing, A Gillion Medical Tests and More