immunizeLABS: Products to Soften the Brunt of Chronic Illness Life with Ehlers-Danlos Syndrome

Disclosure: I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. Please see the Disclosures Page for more information. If you’ve not caught on, I… Read More immunizeLABS: Products to Soften the Brunt of Chronic Illness Life with Ehlers-Danlos Syndrome

Chronic Illness Life with Ehlers-Danlos Syndrome: Health Care Induced PTSD

Health Care Induced PTSD creates barriers to care, lined with sharp knives to cut those who need help the most but do not have the strength to withstand the pain, panic and isolation caused by practitioners who haphazardly wield a biased battleaxe of non-specific diagnoses instead of completing due diligence to help suffering patients. … Read More Chronic Illness Life with Ehlers-Danlos Syndrome: Health Care Induced PTSD

Chronic Life with EDS Update: Accessible Housing, A Gillion Medical Tests and More

It’s a little quiet here at Only in this Head: Chronic Illness Life with Ehlers-Danlos Syndrome but for good reasons. Over the past few months with the holidays (and recovery from my seasonal depression), the house-search, and all my medical appointments my spoons are lacking a great deal. So goes chronic life. I am dealing. Still, it… Read More Chronic Life with EDS Update: Accessible Housing, A Gillion Medical Tests and More

Chronic Illness Life with Ehlers-Danlos Syndrome: Neuropsychology Take One

The neuropsychologist looked at me with all the typical body language indicating sympathy and said (paraphrased): “Everyone one has a plate in life. Your plate is overflowing. As your plate’s contents grew, some things fell off. We will look at those things.” It took me roughly 24 hours to process what exactly this meant. I… Read More Chronic Illness Life with Ehlers-Danlos Syndrome: Neuropsychology Take One

The Twelve Days of Chronic Illness Christmas

The holidays a rough on many of us living with chronic disease and/or disabilities for a number of reasons, each unique and valid.
It’s hard not to let the weight of the season set us back a peg or five. Positive coping tactics are crucial to reducing stress and the risk meter for holiday flares.
The Twelve Days of Chronic Illness Christmas is my way of coping with my chronic diseases and disabilities during a time of the year when I am already prone to increased depression.What is our struggle worth if we cannot laugh together about it every now and again?
Please enjoy my rendition of this holiday favorite and may you have a restorative holiday season filled with tons of extra spoons along the whole holly jolly way!… Read More The Twelve Days of Chronic Illness Christmas

My Chronic Illness Life with Ehlers-Danlos Syndrome: A Personal Health and Life Update

The year twenty-sixteen is coming to a close and I cannot believe how much has changed since this time last year! Chronic Illness Life with Ehlers-Danlos Syndrome peaks and troughs constantly, often without warning.  Since getting my official diagnosis, research on how to best manage my FINALLY named disease helps and I’m adjusting as more things… Read More My Chronic Illness Life with Ehlers-Danlos Syndrome: A Personal Health and Life Update